I am cross-legged on Phoebe’s little canopy bed listening to the rhythm of her bi-pap machine while she dreams away right next to me. She’s home again, this time for a week! Nathan had her all gussied up and ready to go when I arrived with the boys and she was so excited. When I walked in to the elevator before her, she whimpered “I wanna go too”, she was nervous I was leaving her there. Poor thing. She giggled all the way out the front doors of the hospital, said goodbye to her friends at the front desk and we were on our way.
The boys piled up in her bed tonight and the four of them watched Gilligan’s Island, a favorite around here. It was a perfect evening at home. I can’t believe all of the equipment Phoebe has in this room. Two home-health providers came by tonight to drop of her oxygen and bi-pap machine and show us how they work. I was so nervous about going home last time because I wouldn’t have monitors to know her heart rate and oxygen saturation, and now I have both.
Nathan has the med-table all set up again complete with sticky notes noting the times to administer them. We will be giving meds at midnight, 3 am, 5 am and 8 am…*yawn* and it’s worth every bit of it! I am praying that we will really be able to make this time special for her by taking her out more and doing fun things. A friend of mine from highschool sent us tickets to the Dallas Aquarium and I think that will be the perfect thing for us to do with her while she’s home. She can sit in her stroller and still see the sights and it should be fairly easy for us to give her meds in that situation.
As we were driving home this evening I looked in my rearview mirror, and I saw four beautiful faces in my backseat. Phoebe was studying the world outside her window with wonder and the boys were jabbering happily. Tears of gratitude welled up in my eyes and I took a deep breath and whispered “thank you Jesus”…to have that one extra little body warming that often empty seat is such a feeling of completeness.
I remember several weeks ago when everyone was taking their Spring Break vacations, I would scroll through facebook and see the status updates: “Having such a wonderful time at the beach with the kids!”, “On the slopes today!”, “The car is all packed and ready to go!”. I felt so “stuck”, for us it was another week of homeschooling (why take off when we can’t leave) and hospital duty. But THIS week will be our Spring Break! Phoebe is home and we can make a week full of fun right around here. This week is for making memories and helping Phoebe rediscover life outside of the hospital!