Phoebe’s MRI today was squeaky clean and there is much rejoicing in the Fair fold tonight! Nathan and my Mom were at the hospital this morning with her for the clinic visit, port access and MRI prep and Phoebe was in a belly-laugh sort of mood, having fun and spreading her little love beams all around. The name Phoebe means ‘brightness’ and her middle name Lucille means ‘illuminated light’, and a bright, illuminated light she is.
She had a lumbar puncture as well to test her CS fluid for cancer cells and we will get those results later.
Tomorrow Nathan and I are headed to Arlington for the annual home school conference and book fair we attend each year. Jocelyn and Nathan’s parents will be here with Phoebe and we will spend our first night away at a hotel since the first week of her diagnosis. Jocelyn is trained in how to give Phoebe all of her meds and shots and that is such a blessing to us because it means we can steal away for a night and feel confident that she is in good hands.
We look forward to this time each year to get away together, attend great workshops about parenting, scheduling, methods for sowing God’s word into the hearts of our children and lots of other rich topics. We spend the day checking out the different publishers, looking over educational and discipleship materials and going to the workshops, but my favorite part is always eating lunch together alone and talking about our goals for our family for the upcoming year. Most of all, it will be nice just to be together, bask in the relief of a clean MRI and enjoy doing something “normal”.
We are so blessed tonight! Thank you for praying for our Phoebelicious….
And thank you to the secret donor who got the hotel room for us, whoever you are!