Phoebe’s MRI today was squeaky clean and there is much rejoicing in the Fair fold tonight! Nathan and my Mom were at the hospital this morning with her for the clinic visit, port access and MRI prep and Phoebe was in a belly-laugh sort of mood, having fun and spreading her little love beams all around. The name Phoebe means ‘brightness’ and her middle name Lucille means ‘illuminated light’, and a bright, illuminated light she is.

She had a lumbar puncture as well to test her CS fluid for cancer cells and we will get those results later.

Tomorrow Nathan and I are headed to Arlington for the annual home school conference and book fair we attend each year. Jocelyn and Nathan’s parents will be here with Phoebe and we will spend our first night away at a hotel since the first week of her diagnosis. Jocelyn is trained in how to give Phoebe all of her meds and shots and that is such a blessing to us because it means we can steal away for a night and feel confident that she is in good hands.

We look forward to this time each year to get away together, attend great workshops about parenting, scheduling, methods for sowing God’s word into the hearts of our children and lots of other rich topics. We spend the day checking out the different publishers, looking over educational and discipleship materials and going to the workshops, but my favorite part is always eating lunch together alone and talking about our goals for our family for the upcoming year. Most of all, it will be nice just to be together, bask in the relief of a clean MRI and enjoy doing something “normal”.

We are so blessed tonight! Thank you for praying for our Phoebelicious….

And thank you to the secret donor who got the hotel room for us, whoever you are!

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

26 responses »

  1. Phoebe is a miracle indeed! Praise our wonderful Lord!! Have a great time together at the conference knowing you both are doing an awesome job on God’s Miracle Team!

  2. Amey thanks for the updates.. as i sit on my couch, my living room finally picked up from the scattered toys and absent of the roaring wars of two very engergetic 19 month olds … i find myself crying because of it all… as i read your words of rejoicing and your words of exhaustion i am remined of my day.. the moments of losing my cool, forgetting my patience or just giving up for a moment at a time– i weep… i love my boys.. i wouldnt trade them for anything.. and the battles we’ve had today are so small compared to yours… i love you and your family.. thanks for being yall.. the NUZ’ES i know and respect and who teach me even from hundreds of miles away!!!! (… everytime i think of phoebe and you i see you and i struggling to sing “YOUR BELOVED”.. lol.. and i have to giggle a little..)

  3. My sister Is SO excited about tomorrow, too! LOVE this post!! Enjoy your time together and know you have prayer warriors hard at work….

  4. Praise the Lord for the Clear Mri that is awsome. I will be at the same homeschool conference checking everything out. This next year will be our first year to homeschool. Enjoy your time together 🙂

  5. how cool, david’s sister, my sis in law and her fam, are coming down all the way from washington dc to go to the same conference. that’s cool you all will be at the same place. we’re going to get to see them this weekend after they’re done. thank god for the clear mri!

  6. Big smiles here tonight! I will be praying for you and Nathan to have a wonderful, refreshing time this weekend.

  7. Yay Phoebe, you just made my incredibly hard day soooooooooo much better! I’m so happy to hear the good news, love seeing your pretty pictures and am thrilled to hear that mommy and daddy get a night away. Praying for a wonderful, uneventful weekend for you all. Will continue fighting and praying with you Phoebe, we love you:)!

  8. Wonderful news, my heart is rejoicing for your family! My prayers continue for Phoebe’s complete healing and for your entire family. I hope you have a terrific weekend, and way to go Miss Phoebe!
    God Bless you all,

    C.O.L.E. Prayer Team –
    Debby Mooney, St Louis, MO

  9. You are in our daily prayers Amey! Congrats on the clean test results- your family is an inspiration!!

    Much Love from Washington State!

    Cheri Perry

  10. What a wonderful thing to read on a Friday morning….Phoebe’s MRI was squeaky clean!! Praise God from whom ALL blessings flow!! Doing Happy Dance today!!!!!

  11. Praising God for that clean MRI!!! Your family has been in my thoughts and prayers heavily these past days. Praying you have a great get away and thanking God for your “extra hands” right now.

  12. Praise God for His mercies and healing power!! Thanking God He is answering prayer and also, that He is allowing you and Nathan to get awhile together! So thankful you have people that are willing to be used by God to help take care of Phoebe. I know this ministers to you and to Phoebe!!

  13. Happy Mother’s Day to an amazing mother! You inspire me to be a better mommy… and I pray that God continues to bless sweet Phoebe. Love to you all from PA!

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