Aug13

Here She is…

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Here’s the little sweet pea waiting for her turn in the MRI machine…

And here she is with her hard earned pizza and chicken after 18 hours without food! Oh, and her MRI was ALL CLEAR!!

We are packing it up and heading home tonight! Praising God for the good report today and cherishing being able to enjoy good news.

~Amey

Filed under Uncategorized | 43 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

43 responses »

  6. YES, praise GOD!!!!! Hallelujah!! I am so so very happy that her MRI is clear! I know what a great relief that must be for all of you and our prayers are always being answered…..what a great feeling!! Phoebe looks so good too and look at all the food she’s eating! I’m so happy…..hugs to all of you!

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  7. Happy tears!!!!!!! So happy that she can enjoy her birthday and I hope you all have a chance to relax:)! So much love for miss Phoebe! Prayers to you all.

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  10. Praise God From Whom all Blessings Flow! I am so happy to hear this wonderful news! I pray you all get a good night’s sleep and your sweet little girl continues to wow you with her accomplishments. God Bless.

    Janet
    COLE’s Prayer Team

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  12. Our God is awesome. He is in control of all of us. Thank you, Lord, for sweet Phoebe’s good report. Love to a family who needs a good report today! Pat Williams, a grandmother in Tuscaloosa

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  17. A resounding praise God! You don’t know me but I am from Weatherford, TX and my 10 year old daughter and I pray for you all and follow this blog. Today I prayed hard that her scans would be clear and for your comfort in waiting.

    Your recent posts have shown so much honesty, humbleness and vulnerability. I admire that bravery!

    I in my own extent can understand your struggle over what you are sure God is calling you to in His ministry and service. Like the foreign missions and farming etc. Then there is the seemingly powerlessness to fulfill that calling because of the struggles you are having with your baby’s health short term and long term. It is a draining feeling to have a desire to follow God in such a specific way and not be able to just go do it. Then there is the drain of sickness and how that affects every member of your family. I have an autoimmune disease among other circumstances that has seemingly left me powerless to do what I have been so sure of as a calling to in service for God. In my sadness I began to let go of what I know I am called to do conceding that maybe I was wrong. I thought this would help me feel better but I realized it not only removed my power but God’s too. Then a minister friend said to me that he really believed that if God gave me such a strong calling and desire for His service in a specific way like He did that He would not abandon that in me. God is powerfull enough to fulfill his calling in me no matter what my situation or how impossible it might seem. I was encouraged and I hope you will also be.

    It has been a long wait but someday God will use me to foster and adopt children giving them the forever home, loving family and Christian environment they deserve. I also think this will be in the solitude and quietness of a rural farming life. These difficult times will only further prepare me for the mission, deepen my faith and make me appreciate the work God allows me to do even more.

    Keep up faith!
    Erin

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  24. TO GOD BE THE GLORY!!! He is the same today as He was yesterday and as He will be tomorrow and forever! Heavenly sunshine, heavenly SONSHINE filling OUR souls with glory devine. Heavenly sunshine, heavenly SONSHINE, hallelujah! JESUS is LORD!! In good times, and in difficult times, my heart sings glory to His name, sometimes with a change or two! Love to you all, Carol and Tom

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  28. Well you just made my evening! Praise God, and way to go Miss Phoebe! So happy for you all, and my prayers will continue for your family.

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  31. GOD IS SO GOOD!!!! Thank you Jesus for a great report!!! Way to go Phoebe and I hope you enjoyed your pizza and chicken 🙂 Continuing my prayers for complete healing.

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  33. Hallelujah! Praise the Lord! Can’t wait to share this with the rest of Bono Baptist Church ! We have been with you all along … Praying, interceding, rejoicing, crying, pleading, believing and trusting. We rejoice with you and all the others who are standing in the gap for Phoebe and for you ! Thank you Amey for giving us such loving glimpses of your life and faith! May God continue to bless you all !!!

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  36. Amey~
    I don’t even know where to begin….you have been such an inspiration to me ever since I started receiving updates about Phoebe. I have an 18 month little girl and couldn’t even imagine what you ate going through. I am deeply touches by each one of your blogs and am often brought to tears just knowing how frustrating this must be for you as well as your family. I hope things slow down for a bit and you are able to relax. Your little girl and family are always in our prayers. I feel apart of your journey, even though I have n
    ever met you. Can you please email me your assr

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    • Sorry must have hit send before I was finished. Would you mind emailing me your address where we can send things to??? So excited to hear of the great news and hope Phoebe enjoys her pizza. 🙂

      ~Kellie Shano

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  38. Yay!! SO happy to hear your good news! You can enjoy Phoebe’s precious birthday with a happy heart. Much love to you all! Xxx Michelle from Perth, Australia

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  40. Thank you Lord, for continuing the miracle that is Phoebe…thank you for the clean MRI, thank you that she is eating well and thank you that she is doing so well with rebuilding her skills and strength. You are the Great Healer, Redeemer, Savior, and Worthy to be Praised!!!

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