Update

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Phoebe is feeling better today. The fever has passed and she is receiving IV antibiotics. We are assuming she has a little virus as she has had some coughing and congestion lately. Her ANC is zero so they will keep her inpatient until her counts start coming up again. Thank you all for lifting up our girl.

~Amey

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

10 responses »

  1. Nice to be surround by those whol ove and adore you and your family!! Have a great weekend Fair Family!! Praying and sending LOVE from Washington 🙂 Cheri Perry

  2. Thank you for the update, Amey! Thank you, Father, that our Phoebe girl is feeling better today! We pray for her ANC count to rise, Lord, and that before she knows it she’s back home with her family. May Your peace be with them until then.

  3. You have a little trooper in Phoebe. We continue to pray daily for this beautiful little girl and your family. We have watched her come through really trying times and every step forward brings everyone such joy. We trust God that with each step she will grow stronger and her smile bless many people.

  4. Aw, sweet baby girl. Praying she’ll get to go home real soon & never to go back to the hospital again. In Jesus’ name, Amen.

  5. What wonderful news! Thank you Father for the fever passing. Restore her counts and destroy the virus that she may return home. Continue to work your love in her body as you heal her completely.

  6. The Lord is your strength Fair family, we cover you with Jesus healing for Phoebe and peace and strength for you and your husband. We are praying for you.

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