Apr15

MRI Tomorrow

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Phoebe has an MRI in Dallas tomorrow afternoon. It was originally scheduled for May 14th but she has been experiencing some headaches so they moved it up. We spent Saturday morning in the ER with her with a fever that ended up revealing a double ear infection. I am praying that the headaches are just part of the infection. This will be her first post-treatment MRI, please pray for clear scans.

Filed under Uncategorized | 15 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

15 responses »

  1. I am praying for your sweet daughter to be cancer free for the rest of her life. I know God loves her most of all & will give her a happy, healthy life. God bless you all.

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    • Our Dear Heavenly Father, please be with Phoebe as she goes for this MRI. Let it go well and let the results be good. Be with Phoebe’s family as they wait for the results and remove any anxieties from them. We thank you so much for the progress Phoebe has made knowing You are the author of them all. We now pray for many more years for Phoebe. In Your Precious Name, I Pray, Amen

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  4. Praying for cancer-free, headache-free, earache-free Phoebelicious! A fever and headache can all be connected with icky ears. Keep your eyes on Jesus…He is our Lord and Savior!

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  10. Praying with you! Lord, please, place your hand of Peace and Calm on Phoebe and her family as she has her MRI today. May your Angels circle over her with singing. Thank you for holding them close to Your Heart while they wait for the results. Thank you, that You are EVER present and the Giver of all good things.

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  14. Thank you Heavenly Father for Phoebe’s progress and I pray for your healing for her ear infection and good results from the MRI

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