Apr26

Eyelashes and Farm Stuff

Posted on by
Standard

She looks so pretty with eyelashes. I am a little shocked every time I look at her because it’s been so long since I’ve seen her with eyelashes and eyebrows, it almost looks as if she’s wearing make-up! And this is where you want to see a picture, but I don’t have one at hand. I promise I will get some pics up by tomorrow. Life has been blissfully busy lately. We are so thrilled to have a life away from the hospital and ER runs and Phoebe feeling poorly, we have been making up for lost time. Each day after we finish school, we are working on setting up the farm. We have had a great turn-out of people showing up to volunteer their time and energy to help us get started. The end goal is to have a training center for third world agriculture along with homesteading skills workshops and family camp weekends.

We are blessed to have a great church body and wonderful friends to come alongside of us during this new season. Some of the sweetest fellowship happens while preparing garden beds or pulling weeds. The boys have enjoyed the influx of families and kids coming to play and we are slowly but surely beginning to see the vision become a reality.

Phoebe has been feeling great and often comes to sit in her lawn chair and watch me in the garden. Her stamina still isn’t 100%, but she is making progress. Her feet often hurt because of the way she walks these days. She lost quite a bit of muscle in her legs during her sepsis episode and it has caused her to have knock-knees and over pronate. In other words, she puts her weight on the inside (arch) of her foot and it causes a lot of discomfort. We are looking into getting her another pair of orthotics that fit lower on the ankle but address her over-pronating.  

Her kidneys are still dumping potassium and her liver still sustains some damage, so please pray for those two things. Life is sweet these days, busy and full of activity and all of the things we usually take for granted. Joy is in the small things that make up a life and we are soaking it all in.

Thank you all for praying for Phoebe and continuing to ask after her,

~Amey

Filed under Uncategorized | 17 Comments

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

17 responses »

  1. Amey, it’s so good to hear about our girl. I know she’s your girl; I just love to say that because it “comes down like truth.” Looking forward to the pics, and I keep praying for her….

    Ian A. Rogers
    TCIC AUDITOR
    OFFICE: 512.424.2809
    CELL: 512.574.9307
    FAX: 512.424.7164
    No confidential identifiers/data (social security numbers, rap sheets, fingerprints, etc.), may be sent via email unless it is encrypted.

    “This message contains information which is confidential. Unless you are the addressee (or authorized to receive for the addressee), you may not use, copy or disclose to anyone the message or any information contained in the message. If you have received the message in error, please advise the sender by reply email and delete the message.”

    Reply ↓

  2. Love love love your update! So thankful and give God all they praise!!!! Can’t wait to see pictures!!!!! Hugs and prayers still sent your way!

    Reply ↓

  3. What wonderful news. We can’t wait to see the pictures. We continue to pray for complete restoration

    Reply ↓

  4. Amey, we are so happy to hear you talk of normal busy days and eyelashes! We Pray for you and your family daily. We know it just gets better from here!

    Reply ↓

  5. Great to know Phoebe is getting more strength and enjoying the gardening. I am putting in a garden also and organic. Often pray as I am working and that mental picture of her will bring forth much prayer for continued strength and healing. The joy of The Lord is our strength- and I know Pheobe has that Joy!

    Reply ↓

  9. So good to hear that Phoebe and the rest of the family are doing great. Normalcy is great don’t you think? 🙂 So happy to hear this and can’t wait to see pictures. She’s such an angel, and God has used her mightily. He uses the ones we don’t anticipate! Love Ya, Phoebe! :)))) Continuing to pray!

    Reply ↓

  12. It is so wonderful to hear this, and to know you and your family are doing so well! God is so good! You deserve this break and some fun time with your family. May God richly bless all of you!

    Reply ↓

  14. Continued prayers for complete healing for dear Phoebe. May Christ continue to bless each and every day with joy for y’all!

    Reply ↓

  15. Eyelashes! Beautiful . . .as are your words in this post. Thanking the Lord with you for His miracles. . .some and large! Thank you for updating and continuing to share with us about “our” girl. hugs and prayers — Jeannie

    Reply ↓

Leave a reply to Alice Giunta Cancel reply