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How quickly things can turn. Phoebe has been riddled with fever all night. She got up to 104.8 last night and is at 103.8 right now. Her pain has stepped up a notch and since hospice is not set up yet, we are headed to Dallas for morphine. Please pray for my girl, she is miserable..

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

64 responses »

  1. Praying Amey!

    Sent from my iPhone Cheri Perry 1-888-249-9919 You can get everything in life you want if you just help enough other people get what they want. ~Zig Ziglar 1927-2012 Rest in Peace dear friend!

  2. Oh dear. Precious Lord please take this sweet baby’s pain away. Tell the fever to go away, it must listen to Your voice. Travel mercies for them, Father. Please just surround the Fair family with grace & peace. Thank you Father, in the name of Your precious Son. Amen. Godspeed.

  3. Praying for Phoebe and your family!
    Lord, please place your arms of peace and comfort around Phoebe and her family. Please remove the fever and pain from this precious little girls body, as only you can do Lord. In Jesus Holy and Precious Name, Amen!

  4. Crying out to the Father on y’all’s behalf. Oh how He is sovereign. I have no doubt that Jesus cradles your baby girl as I type this.

  5. Oh Sweet Amey,

    I had the privilege of meeting your darling boys the other day while on horse back at Twin Oaks. I am so very sorry for the pain you have endured and are enduring. May you be held close to His heart.

    As you hurt to watch your girl suffer, I feel sure it hurts His heart to watch your crushing. He loves you all so very much.

    Praying for you.

    Patty Forney

  6. SHE HAS HAD ENOUGH!! IT IS NOW TIME FOR HER TO ENJOY LIFE AND BE AT PEACE
    WITH HER FAMILY AND FRIENDS. WE PRAY TO GOD THAT THIS LOVABLE CHILD HAS
    A QUICK AND COMPLETE RECOVERY..RIGHT NOW, YOU HAVE AN UNTOLD NUMBER
    OF PEOPLE THAT ARE PRAYING AND HOPING FOR YOU. JIM AND CARY PUCKETT

  7. Amey — the Lord woke me early this morning to pray for Phoebe and your family. Didn’t look at the clock but am thinking it was around the time of your post. He is always watching over you. He never slumbers. Continuing to pray. . .Lord, please bring relief from the pain and fever. . .please be close to their hearts and place your hand of comfort and strength on them.

  8. We are praying for your precious Phoebe….. We are believing for a miracle and standing on the promises of Jesus. ❤

  9. Amey, fever is one of the body’s ways of exhibiting fear. If you can hold on to the Peace that Passes All Human Understanding ~ which guards your heart and your mind ~ you may be able to quell Phoebe’s fear with the super-natural authority in the name of Jesus. (His super added to our natural!) Blessings as you go.

  10. I came upon your site a while back. I am so sorry to hear about your precious baby girl! She is so beautiful. I looked at your words just now and it broke my heart. We are praying for her and your family. As a mother it is so hard to see our babies in pain, I will pray for the pain and fever to cease and for God to do his works and take away this nasty cancer!

    With great love,
    Erin L
    South Carolina

  11. I can’t quit thinking about your family! My Heart Aches! I keep looking for updates every 5-10 mins. I am totally consummed and I know that God is watching over you all. I pray HE comforts you all and Phoebe!!! I pray he places his hand on each one of you!

  12. I have just learned of your beautiful little girl today, and I wanted to tell you that both my son (who is 6) and I watched your video. He was so concerned for her and wanted to send her all his hope. I am sending you my prayers.

  13. I do not know your family, except through reading your posts that an old high school friend puts on facebook. I want you to know that I have been praying for you and your family the last few days. Be encouraged that even people you do not know are lifting you up to our Heavenly Father. 🙂

  14. Amey, I feel consumed by waiting for updates too. I have such a heavy heart for you and nathan. Cling to each other, cling to your children.

  15. HI Amey,

    Lots of love to you and your sweet daughter and entire family during these days. Lots of love….and prayers.

    Scott

  16. Hello Fair family,

    My name is Shanna and I am a hospice social worker in Louisiana. We have some common friends who have posted a link to this blog. I’ve read back a little and am praying for your amazing family. Thank you for sharing your story, thank you for introducing the world to your precious gift, Phoebe. My family will be praying for your family continually!

  17. Please know that we will intercede in prayer for your baby girl. We pray that God will have his hand upon you as well. We are so very sorry. Sending hugs and positive thoughts as well.

  18. I am friends with Vania and Chrystal…I am praying for your sweet little girl and sharing her prayer needs with others. I work with YWAM Orlando with love and prayers Barbara

  19. I am praying for you and your family! Your baby girl is BEAUTIFUL! It breaks my heart to see your little darling go through this. She is amazing and so strong. I am praying so hard and getting everyone I know to pray as well. Just know there are tons of people standing with you in faith.

  20. Praying Phoebe’s fever subsides and the meds will ease her pain and discomfort and soon she will be able to go to zoo, dancing and her birthday party. May God give your family strength. God Bless

  21. Praying for Phoebe to get some comfort. And of course praying for the rest of the family!!! Praying for HIM to wrap His loving arms around Phoebe and her entire family during this time of uncertainty. I’m praying for a miracle!

  22. I am praying and thinking of Phoebe most of the day. God has you. His arms are around you and you will not fall. He has you!!! He has His special “Miracle Girl” wrapped up tight. Hold on to Jesus!!

  23. We are praying for your sweet baby girl and your whole family. Lord, continue to hold this family in your loving arms and to provide them with the type of amazing comfort that only you can provide.

  24. Our prayer Chain from Mazatlan Mexico Vineyard Church are praying for Phoebe and the family. I personally have been thinking about her all day. May God’s love surround all of you and just hold onto your little girl. God bless.

  25. I found out about Phoebe the day after she was diagnosed last year. Someone put her on a prayer list done by a wondeful man named Larry Kenada. He sends a daily verse and prayer request each day out to hundreds of people around the country. I live in Northern Cslifornia and was immediately drawn to this story. I share it with others asking them to pray for Phoebe and her family. Just know that you are loved and prayed for by many. God bless.

  26. Though we are ‘total strangers’, we are your ‘family’ in Christ. Your story has reached us, through some dear friends…so we came to the web to learn more about Phoebe. What an ‘atypical’ miracle she presently IS! We can’t imagine the pain, the ups, downs, and night terrors you’ve endured, much less what this little trooper has had to endure—It is obvious that you are NOT alone on this journey. The LORD Himself is with you- with her! And He is using this precious baby for His Glory– Just uniting the Body of Christ in intercessions, filling hearts with such compassion, exercising so much faith, tapping into His Grace…He IS being glorified. We KNOW healing will come. In His time and in His way. May your spirits find rest in His Strong and Constant Presence.- Carol and Dr. Gary Crossland and Nevaeh

  27. In God there is only heath, wealth, love, peace, harmony and perfect self expression so then there is no sickness, disease or anything negative. I know, with the state you as parents are it is difficult to see it. But if you seek God’s help to see Phoebe whole and healthy, speak over her -‘Phoebe’s body is now in perfect state of health by Divine right in perfect ways, under grace.’ you’ll see change begin to happen. And as a parent if you are carrying any resentment against anyone or any situation say this- God I surrender the burden of resentment (name of the person you’ve against or the situation) and I now go free. Keep affirming till you see light in the darkness. Be blessed!

  28. My family has been following you all the way through this journey, praying for all of you constantly. I am so heartbroken and pray that she finds comfort… Phoebe is a light in the darkness and I am certain know this world will be a lesser place without her.

  29. Lord, I don’t know the words to pray for this baby and her family. But that’s ok because you don’t need the words since you can search the hearts. Lord, my heart is just crying out to you: Please heal Phoebe in Jesus name. Amen.

  30. My husband and I are praying for Phoebe and your family. I am soooo sorry for all that she has had to indure. We pray for her that the time she has left that it will be spent as pain free, and healthy as possible. We are praying that she will get the pain relief she is in need of. Please know you are not alone in all of this. We are all here following her story and praying for a miracle.

    God bless all of you. May the sun shine on all of you again soon. HUGS

  31. Nathan and Amey,
    I just read the updates this morning and my heart breaks for your family. Know that we are praying for you, Phoebe and the kids. She is a precious little girl and God will use this miracle for his glory!

    Mike

  32. We’ve been quietly following and praying from afar for over a year. Little Phoebe and the faith and perseverance you show has inspired so many of us, yet we would all give it back in a heart beat. As a grown man, I cried on the way to work this morning thinking of you all. We pray for Phoebe’s comfort and God’s strength. Prayers from St. Louis.

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