Phoebe Resting

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We are so grateful for the outpouring of love and support everyone has shown to us these last 2 weeks. Phoebe is demonstrating some symptoms of her illness that make her easily irritated, sensitive to noise and light and give her the desire to sleep a lot. She was also diagnosed with a UTI today which causes frequent fevers. All of this makes it difficult to have company and also be there for Phoebe in the way that we need to. Please know that we will keep you posted about how she is doing, and please respect our need for quiet family time as we soak up our precious girl.

Thank you
-Amey

About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.

10 responses »

  1. Amey, we are praying for your family as you go through these increasingly difficult times. We hope you can feel the love we send your way. Although we have never met, please give Phoebe a kiss for us as we love her dearly.

  2. Prayers for quiet times of renewal and rest for Phoebe and all of you. I know God is sending extra angels to minister to you. No doubt Phoebe is “entertaining angels unaware” with her joy and faith! Hebrews 13:2

  3. Amey! Just want to affirm and confirm your courage to say ‘no visitors’. Your need to soak up Phoebe is sooooo real, VITAL and valid. I am so thankful for your being able to communicate that here, as well as when you have addressed well meaning ‘advisors’. You and Nathan inspire with your wisdom and gentleness… and ‘truth in love’ ways! Cannot wait to REALLY get to know you ‘in person’ — prolly in Heaven! You two are delightful.

  4. Amey and Nathan and your entire family are daily in my thoughts and prayers. My heart is filled with love and compassion for you all. Know that you are loved and prayed over for PEACE that only HE can give.

  5. We continue to pray for your family and for Pheobe’s healing. As we all continue the fight, you focus on Pheobe and the family. I appreciate that you take time to keep us updated. Bless you all!

  6. You are dearly and deeply loved and enfolded in His Heavenly Arms. He is singing over all of you as you stand in your strength of knowing His Ways are higher than we can know right now.

    I’m awed – and grateful – that you find the time to share your struggles and triumphs and needs so we can stand with you in prayer.

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