Author Archives: Amey Fair

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About Amey Fair

I am Amey Fair, wife to Nathan, and home-educating Mom to Benjamin (9), Averic (7), Deacon (4) and Phoebe (2) . Phoebe was diagnosed with a rare childhood malignant brain cancer called Atypical Teratoid Rabdoid Tumor on January 1, 2012. She had complete resection surgery to remove the tumor on January 4th and began chemotherapy using the Dana Farber protocol on January 26th. A few weeks ago I was sleeping in the chair next to Phoebe's bed in the hospital when I heard her little voice drawing me out of sleep. It was 3 am and it took me a minute to shake off the slumber. "Mommy I'm a mean girl" I thought she said. "No Phoebe, you're a nice girl!" I replied. "No Mommy, I'm a MIRACLE!" Phoebe said. "I'm a MIRACLE, I'm a MIRACLE, I'm a MIRACLE!" she continued on. My tears welled up and spilled over as she made her declaration. Phoebe doesn't know the word "miracle" nor the concept, she's only 2. It was as if the Lord was speaking through her like a prophetic utterance. She fell right back to sleep and I sat there awake, lingering in the magical moment. Less than 40 children are diagnosed with Phoebe's type of cancer in the U.S. each year. This is why it's called "ATYPICAL Teratoid Rabdoid Tumor". So, I have titled this blog in honor of Phoebe, our "Atypical Miracle". We are YWAM'ers, serving in missions through Youth With A Mission since 1998. Before returning to the states 1 year ago, we lived near Guadalajara Mexico for 3 years. It was during our year of agricultural missions training in Waco, TX that Phoebe began exhibiting symptoms from the pressure of the tumor on her brain. Weight loss, lethargy, extreme thirst and vomiting were her symptoms. We have been granted sabbatical during this time to focus on Phoebe's intensive chemotherapy treatment and are renting a home in Dallas near the Children's hospital where Phoebe is being treated. Like the woman who touched the hem of Jesus' robe in Luke chapter 8, we cling to Him, knowing that He is Phoebe's healer. If we can just touch Him, be near Him, bring Phoebe to Him each day, we have hope. He is our hope. Thank you for coming along on this journey with our family. It's therapeutic for me to write it all out, and in so doing, I hope God will use it for His glory.
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Tapatia:
Everyone loved her from the start. Here she was, all blonde and blue and fair, born in Mexico. “Ella parece una munequita” they said; “she looks like a little baby doll.” And they would ask to hold her, and I always said yes because that is the culture in Mexico; babies belong to everyone, they are for everyone to admire, touch, and love. And while they were fawning over her, I would proudly announce; “Ella es Tapatia” ; “She was born here, in Guadalajara.” (Essentially, she’s a Guadalajaran) And their eyes would light up and I would smile. Such sweet days.

We lived in a house in town with a banana tree in the yard at the foot of a mountain range that surrounded a lake. The boys were 7, 5 and 2 and then baby Phoebe. I home schooled 2nd grade and kindergarten that year and taught writing and composition 2 days a week at the Christian school on the missionary base. Nathan coordinated short term outreach teams, taught a Bible study at a local prison, and headed up the Homes of Hope home-building ministry.

After school, the boys would play in the water-hose and Phoebe and I would relax on a blanket under the trampoline with her dog Sadie. Getting her dressed each day felt like Christmas, finally a girl to gussy up! It was a precious time, and the last year we would have before our lives were touched by suffering.

Shortly after Phoebe turned 1, we moved back to Texas after 3 years in Mexico. We lived and worked at an agricultural training farm called World Hunger Relief, and hoped to return to Mexico with some real life experience in agricultural practices. It was a tough year. I miscarried a baby at 13 weeks and then miscarried again 3 months later. I spent so much time feeling ill with morning sickness and then feeling sad about the losses. I regret not paying more close attention to Phoebe…it was the last healthy year I would have with her. It’s hard to believe I had a daughter who could run and play and sleep in her own bed and who didn’t need meds or shots or an ng tube. It seems like a story I told myself.

On new years eve 2011, my face book status said this; “Ready to give 2011 a swift kick in the rear on its way out. Here’s to a better 2012.”

The next evening I was in the ER at Children’s Medical center Dallas with my mom and a very sick Phoebe waiting for CT scan results. I can close my eyes and see it so clearly still. Phoebe was wearing her dark blue jeans with the big ruffles on the cuffs, and the maroon shirt with the flower embroidery and ruffles at the wrists. She had on her Stride Rite Mary-Janes, the brown ones with the scuffs on the toes. I ran my fingers through her blonde curls while she slept next to me underneath the fluorescent lights.

I often think of the lady who performed the CT scan. She saw that baseball size tumor on her screen, and for just a moment she was the only one in the world who knew that life as we had known it was over. Phoebe held still and the lady gave her a teddy bear. I still have the teddy bear, but my daughter is gone. How can that be?

After that everything is a blur. “She has a mass on her brain”….”take her to the ICU”…”will need surgery”…”we’re so sorry”…

And there we were taking each moment as it came, not fully realizing the path we had started down.

We pulled in to a gas station today and Nathan hopped out to fill the tank. I leaned my head back on the seat and looked out the window. ‘EL TAPATIO RESTAURANT’ the sign in front of me read. “The Guadalajaran”. Nathan tapped on the window just then and pointed toward the sign. I nodded, knowingly. And at dinner tonight they accidently gave us 6 waters. At the end of the table was an empty chair with a little cup and straw. I loved it, and cringed inside all the same time.

Remembering my girl tonight…
Phoebe amey

Phoebe cute

trampoline

Tapatia

On the Road

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Yesterday at 10:30 pm was one week since our Phoebe left for heaven. We are out of town for a little while..needing some space and time between last week and the rest of our lives. Today was a gift; we ate at a restaurant where patrons are encouraged to throw their peanut shells on the floor and of course I thought of Phoebes. Then they brought rolls and butter, and if you know Phoebes, you know the girl can spend half an hour buttering one roll, it’s one of her favorite pass-times. Later this evening as the sun was setting we came upon a long row of cars parked beside a country road and people sitting in their lawn chairs looking toward a field. We stopped out of curiosity just in time to see about 15 elk make their way out of the woods and into a meadow to graze. It was beautiful. We talk about Phoebe, the boys take turns sitting in her spot in the car so that her seat isn’t empty, and we watch videos of her throughout the day. Expecting good things from this time away with our boys. Thank you for thinking of us and continuing to pray for us.

~Amey

Day 6

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A couple of weeks ago Phoebe and Deacon were in my room playing. She took my favorite lip balm off my bedside table and asked if she could have it. I hesitated, after all Phoebe has about 26 tubes of sparkly Hello-kitty chapstick. I knew she would set it down somewhere and I wouldn’t see it again, but I couldn’t tell her no, so she toddled out of the room happily on her way with my lip balm in her clutches. I haven’t seen it since then, but I know one of these days I’m going to come across it and cry like a baby. For now, it’s a mystery where my little Phoebelicious put it and I like it that it’s here somewhere, out of sight right where she left it. Grieving; Day 6

Day 5

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Rough day. Visited her grave, arranged her flowers a little, blew some bubbles. Came home, cried a lot on her bed. Found her sandals in the basket of her stroller and saw her little peanut shells under the bench on the front porch. Grieving; day 5.

Feeling Thankful

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So many names of people we know and love and who also love Phoebe written in her funeral guestbook. Wish we could have hugged each and every one of you. Thank you to everyone who came to celebrate her life with us. We were so blessed just by your showing up. Feeling thankful tonight.

-amey

Come Celebrate Phoebe’s Life With Us

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We hope that all of you will come to celebrate Phoebe’s life with us.
The sanctuary is large enough to seat all those who love her.

Visitation:
Tuesday, October 8th, 6:00pm-8:00pm
Green Acres Baptist Church, Tyler at the Chapel Parlor

Celebration of Life Service:
Wednesday October 9th, 10:00am
Green Acres Baptist Church, Tyler

Burial to follow at Lindale City Cemetery

Green Acres Baptist Church
1607 Troup Hwy.
Tyler, TX 75701

For memorial donations in Phoebe’s honor:
www.phoebefair.me
www.cureatrtnow.org

Flowers may be sent to:
Caudle-Rutledge Funeral Home
206 W. South Street
Lindale, TX 75771
903-882-3141

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