Phoebe is feeling better today. The fever has passed and she is receiving IV antibiotics. We are assuming she has a little virus as she has had some coughing and congestion lately. Her ANC is zero so they will keep her inpatient until her counts start coming up again. Thank you all for lifting up our girl.

~Amey

Nathan and Phoebe are in the ER tonight waiting to be seen. Phoebe had not been feeling well this afternoon; lethargic and sleepy, and when she woke up after her nap around 4:30, she had a fever of 102.6.

Usually after Phoebe receives a blood transfusion she feels much better and things are uphill from there, so it’s a little scary for her to spike such a high fever with her counts bottomed out. Please keep both of them in your prayers tonight. Port access can be a little traumatic sometimes in the ER if she doesn’t get a nurse who is familiar with accessing. She still has a fever of 102.4 and is feeling really crummy.

We already know that she will be admitted because her counts are bottomed out and she has fever. I will update when we know more.

Thanks,  Amey

Phoebe is doing well but ended up in the hospital today with low hemoglobin. She has spent the day getting transfused with a bag of blood.

-nathan

Phoebe is doing great! As expected, she needs a blood transfusion for low hemoglobin just as she does each time she has this particular round of chemo. Tomorrow morning I will take her in to Dallas to be transfused which usually takes about four hours, and then we should come home.

There has been a pretty joyous atmosphere around here lately. It feels so good to not have the next round of chemo looming ahead. I can’t believe that when her counts come back up they just get to keep going up, up, up! It will be such an incredible feeling to be able to take her out and about without worrying about her immune system.

She keeps telling everyone, “My hair’s gonna grow back!”…it’s the sweetest thing. She already has a little bit of peach fuzz and looks so sweet.

We had our meeting with the social worker to apply again for night help and we are still waiting to hear back about it. He was very encouraging and we feel very hopeful that we will be approved. I will continue to post updates and pictures as Phoebe recovers. You all have become so much a part of our journey through your prayers and encouragement these past 14 months that I can’t imagine not keeping you posted!

All our love and gratitude to you,  Amey

What a day. I am so blessed, and our sweet Phoebe was so blessed by all of the family and friends that made her “NO MO CHEMO” celebration so special. Thank you to all of those who came and waited patiently for her discharge from the hospital, and to our AMAZING church family at FBC Lindale for decorating our home so beautifully, folding laundry, unloading my dishwasher and changing the CATBOX!

Phoebe’s homecoming parade was awesome! We came home to a wonderful feast of fancy cheeses and breads, fresh fruit, nuts, etc. We are blessed to have so many wonderful people in our lives. Thank you for making this day amazing for our Phoebelicious and for all of us!

MRI Results were good, everything looks fine. She got her intrathecal/spinal chemotherapy and the LAST round of chemo starts tonight! She is back in her room munching on a cookie after a long day of no food. Here’s to the grand finale!

-amey

Phoebe is doing better since her seizure this morning. They only had room for us on the heart floor. (Don’t worry, her heart is fine). All weekend, and since the seizure, she has had really bad headaches, stomach cramps and vomiting. In the morning they will be giving her an MRI to make sure everything is okay.

She will also be receiving Intrathecal chemo as well as IV chemo all week. But as we all know this week her last and by Saturday we will be done for good!

-nathan

Phoebe had a seizure early this morning presumably due to low sodium. Nathan is on the way to the hospital with her and I will update when we know more. She is due to start her last round of chemotherapy tomorrow.

Phoebe feels better each day that her counts come up. She has spent the day toddling around the house playing with the cat, kissing her dog, snuggling her brothers, laughing, dancing, singing “Ho-Ho-Ho-Hosanna, Ha-Ha-Ha-lelujah, He-He-He-He saved me and I’ve got the joy of the Lord!”

I keep thinking that this will be even more commonplace when chemo is over and she ALWAYS feels this good. I can hardly fathom life without chemo, but we are all really excited that it is coming so soon!

Phoebe will begin her last chemo treatment on the 26th. She will have intrathecal (spinal) chemo and it will be a tough round. And then we will leave the hospital and BE DONE! Ahhhhhhhhh!!

I wish she could understand that this is IT! I am so happy for my sweet girl, just knowing that life is about to be a lot more simple and enjoyable for her. Needless to say, there is a lot of excitement going on around here and we are beginning to dream again..and plan, and look to the future, and that feels good.

Last night we were blessed to have a dear lady from church come volunteer to spend the night with Phoebe so we could get some rest. Phoebe has never met a stranger, so she loved on Miss Linda just like she was family. Tomorrow we are meeting with a social worker about getting some night help. Please pray we are accepted this time and it goes through.

Thank you for all of your prayers and love,

Amey